Understanding Midwives’ Preferences for Providing Information About Newborn Bloodspot Screening

The Role of Information Provision in Economic Evaluations of Newborn Bloodspot Screening: A Systematic Review

BACKGROUND The extent to which economic evaluations have included the healthcare resource and outcome-related implications of information provision in national newborn bloodspot screening programmes (NBSPs) is not currently known. OBJECTIVES To identify if, and how, information provision has been incorporated into published economic evaluations of NBSPs. METHODS A systematic review of econo...

Parental Decision-Making and Acceptance of Newborn Bloodspot Screening: An Exploratory Study

OBJECTIVE Newborn bloodspot screening is an internationally established public health measure. Despite this, there is a paucity of information relating to the decision-making process that parents go through when accepting newborn screening. This is important as screening panels are expanding; potentially leading to an increasing amount of complex information. This study sought to understand the...

Some Concerns About Newborn Screening for Congenital Hypothyroidism in China

Stakeholder attitudes towards the role and application of informed consent for newborn bloodspot screening: a study protocol

INTRODUCTION Newborn bloodspot screening (NBS) involves testing a small sample of blood taken from the heel of the newborn for a number of serious and life-limiting conditions. In Canada, newborn screening programmes fall under provincial and territorial jurisdiction with no federal coordination. To date, we know very little about the underlying beliefs around different consent practices or how...

Implementation of universal newborn bloodspot screening for sickle cell disease and other clinically significant haemoglobinopathies in England: screening results for 2005–7

Early results from the National Health Service Sickle Cell and Thalassaemia Screening programme covering the whole of England are reported following the implementation of the national newborn blood-spot screening programme. Of the 13 laboratories performing screening, 10 chose high-performance liquid chromatography as the first screen, with isoelectric focusing as the second confirmatory test. ...